Sitting here in the hospital, Wayne dropped me off and he and the boys went on to church. I can say I truly understand what my cousin Wendi meant when she said I just want all my family under one roof. It is so hard to try and manage the family when it is separated. I tell me I have this image in my head where I have all this stuff in a blanket and I am trying to pull all the ends together, but they keep trying to slip out. Wayne and Michel’s schedule has gone out the window…bed by 8:30pm yeah right. They now like to climb in our bed when we get home and fall asleep, we let them, we know it’s because they miss us. Thank God for family. I don’t know how we would be able to do what we are doing without family…everyone has chipped in and offered to help anyway they can.
Christian is doing well today, they are talking about taking him off the ventilator, I pray that he tolerates it, the goal is to put him on a c-pap machine and then eventually completely on room air. He is agitated by the tube in his throat. Have you ever seen a baby cry and make no noise? It is one of the saddest things I have ever witnessed. The tube is between his vocal cords so he can’t cry out…but he is crying. He is breathing above the ventilator which is great, his gases are good. He looks a little swollen so they are going to give him something to help him loose that, maybe make him pee it out? I am not sure. He has been having wet dipes, he hasn’t had a bowel movement since 2/5 so I am praying that he gets one today. Another concern and prayer that I have is for his intestines, they are trying to rule some things out, they are unable to confirm a few things and I am just praying to God that they don’t find what they believe may be there. I am believing God that all is well and that Christian won’t have to deal with the intestinal issues. God is more than able, He really truly is. I have put my baby in the hands of God. And I am believing God for a miracle, I really am. I told God there was a conversation that I refuse to have with Wayne Jr and Michael so He was going to have to do something. They have heard enough about this family member or that family member went to heaven to be with the other family members…I refuse.